I hope that you are in the best of health.

Ta suil agam go bhfuil tu i mbarr na slainte

Isle of Man: Why Do So Few People Visit This European Island? | Luxury  Travel Advisor
Douglas, Isle of Man

English: I hope that you are in the best of health.

Irish: Ta suil agam go bhfuil tu i mbarr na slainte

Pronunciation of the Irish taw su-ill ah-gum guh will tu ih marr nah slawn-che

Kwe, I respectfully acknowledge this land on which I live and which provides me with joy and shelter as the ancestral homelands of the Beothuk, whose poignant history is now under revision.

I acknowledge the island of Ktamqamkuk (Newfoundland) as the unceded, traditional territory of the Beothuk and the Mi’kmaq. And I acknowledge Labrador as the traditional and ancestral homeland of the Innu of Nitassinan, the Inuit of Nunatsiavut, and the Inuit of NunatuKavut. I recognize all First Peoples who were here before us, those who live with us now, and the Seven Generations to come.

Here I am, as a toddler, receiving royal treatment en route to or from London, England or Douglas, Isle of Man.

This post is dedicated to the memory of our adopted parents, Máire Kathleen and James Diarmuid Scully and my only sister, Theresa Rose Scully.

After returning to Dublin to continue my medical studies in 1975, I announced that I planned to train to become a pediatric hematologist. Reactions varied. Few people had ever heard of pediatric hematology. People would nod with blank looks on their faces.

My darling cousin Nuala, who lives in North London, is one of my favourite people. Nuala recently reminded me that our families divided people into lovelies and horribles. As children, my sister, cousins, and I were blessed to live with lovelies and our entire small, close-knit family was made up of lovelies. My sister and I agree that we were indeed very fortunate.

We had no creepy uncles. Within our close-knit, loving family, we were never exposed to abuse, cruelty, domestic violence or incest. Although we were cherished and loved within our family, we were reared in an ultra-misogynistic and toxic culture. Theresa and I were considered wild, and we were always in trouble. As a child, I constantly lost my belongings and was always in terrible trouble with the nuns who taught us.

Our beloved and very innocent parents were unfairly blamed for poor parenting skills. Our mammy allowed me to spend a vast amount of time hiking up and down to the Ben on Beann Éadair, daydreaming and imagining. The rest of the time, I had my nose stuck in a book.

Socially clueless with my peers, I was either tongue-tied or chatted incessantly. I was also prone to blushing a bright scarlet at the drop of a hat. As I was very short-sighted and could not run, I was hopeless at field hockey and basketball. Although I loved sports, I was no athlete. Now, I wonder if I might have had more success at sports if I had been diagnosed and treated for exercise-induced asthma and for my very heavy and painful periods.

Here I am, as a toddler, enjoying a holiday in The Isle of Man with my darling mammy.

My life was blissful until age 11, apart from always being in trouble for losing things. Even today, I can remember the names Port Erin, Laxey, Ramsey, Snaefell from a magical trip I took with my darling mammy and daddy. We took this trip when I was still an only child, so I’m guessing I was only about two. Amazingly, I can still remember the names of places we either visited or spoke of. Hopefully, 65 years later, I can plan a visit, perhaps with my sister.

The joys of the Isle of Man - a little British secret of an island | Daily  Mail Online
Peel Castle, Isle of Man

During the pandemic, I began studying Miꞌkmawiꞌsimk, the language of the Mi’kmaq people. These studies reawakened my love of Gaeilge, the Irish language. Now I’m back, trying to listen to TG4, the Irish language channel. I am fascinated that now there is a revival of the Manx language. I’m fascinated because the Isle of Man was central to the Norse world, so I expected Manx to be close to a Scandinavian language. To my delight, Manx is much more like a dialect or close cousin of Irish.

Isle of Man Steam Railway - The Outdoor Guide
Isle of Man steam railway

Our darling mammy devoted herself to finding activities for her darling daughters to enjoy. I loved swimming in our local outdoor rock pool, competing in swimming races, attending ballet, studying elocution, and taking piano classes. My fabulous little life fell apart as I entered puberty.

Now I see that the combination of my undiagnosed bleeding disorder, undiagnosed exercise-induced asthma and undiagnosed Attention Deficit Hyperactivity Disorder hit me hard at the time and made adolescence tough. Like the 0.1% or more girls with an undiagnosed bleeding disorder, I had no idea that my periods were abnormal. If I had received tranexamic acid and been screened for iron deficiency, perhaps my life would have been easier. If I had been screened for ADHD and given great support again, life might have been easier.

Unfortunately, vast numbers of people of all ages suffer more than they might with an accurate early diagnosis and optimal therapy. There are many barriers to both in our current highly competitive and uncaring modern societies.

Largest working waterwheel in the world - The Great Laxey Wheel, Laxey  Traveller Reviews - Tripadvisor
Laxey Wheel, Isle of Man

In the 1960s and 1970s in Ireland, boys and men ruled. No one ever spoke of menstruation or any other issue that affected girls and women. I was desperately shy and socially awkward; I would most definitely have preferred to have died a hundred times over than to discuss my menstrual problems with anyone.

I was in such denial about my period issues that, starting in 1998, I had been actively involved with the Women and Bleeding Education movement for years before I realized that I lived with a bleeding problem. Here, I want to shout out to all the wonderful people across our planet who work to educate and support girls and women affected by treatable conditions that significantly diminish their quality of life because of a lack of recognition and access to therapy.

Educating and supporting girls and women with chronic health challenges is dear to my heart.

4 Responses

  1. What a fantastic resource! The articles are meticulously crafted, offering a perfect balance of depth and accessibility. I always walk away having gained new understanding. My sincere appreciation to the team behind this outstanding website.

    1. Thanks so much,

      I am only seeing these comments today April 7 2024. My apologies. I post on Linked and Substack and FB and its impossible to keep up with all the happenings. I am 67 recovering from cataract surgery in March and from intensive breast cancer therapy and multiple side-effects. Its all good. I am getting better but I need time to rest and heal. I am a licensed Hematologist. I still run one clinic per week. I am also a CCT Meditation Teacher. I love life, living, fun, people, especially babies, children , teens and young people. I love comedy, creativity, chocolate, coffee, connection, art diversity, linguistics , music, nature interconnection and inclusion. I especially love this planet the earth. I know there is a vast universe and the stars are beautiful. I know the moon can be beautiful I have no interest in space travel. I am concerned that our global economy is based on endless war and with this coercive control, abuse, brutality, domination, genocide, murder, mutilation, rape, sadism, torture and violence. I greatly admire women and men who train to battle criminals, despots and tyrants. We need civil society to prevent a take over by authoritarians. Its all complicated and based on dualism and othering. We need to transform our global systems and I think we need to try to integrate the United Nation Declaration on the Rights of Indigenous Peoples, the science of the Nine Planetary Boundaries and the economics of Earth For All. This is a mammoth project.

      So far I am the sole proprietor of BeCompassionatenl.inc.I am the sole author. I share talks and articles by all kinds of people whose messaging,I find helpful. I try to always acknowledge others and their work .I just do not have the time to add formal citations, I have paid many talented IT professionals for advice and support. I have spent too much of my life-savings since 2016 and so now I am trying to do more myself or to find collaborators and partners who can help me and who I can help without paying for a lot more services. I am OK with having overspent on this project as I feel sharing accurate hopeful and helpful messages that are not fluffy and sugar -coated is so important. Currently I hire Orange Digital Technology to help me. The Messaging I am keen to amplify is so different than what is often amplified on social media, that I feel we all need to help. I am glad you enjoy this website. Perhaps you might like to join the BeCompassionateNL Mighty Network ? Perhaps you may enjoy taking a CCT meditation course with me ? I am starting back to teach online after an illness. I will start teaching the 8 week CCT Course next week. Perhaps one time slot may work for you. I work in the gift economy and this means that I never turn anyone away because they do not have extra money to pay. I teach CCT Live on Zoom and I use a Mighty Network account. The CCT materials are under copy -write. They are not mine and so I try to only share these with people in class. Meditation is powerful and it can be harmful which is why I trained to teach this life skills course and why I recommend studying with a qualified meditation teacher. David Treleaven is one of a number of people who have raised the alarm about adverse effects of meditation especially for those who live with unprocessed trauma. Warmly, Frances Scully

      Warmly, Frances Scully

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